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From frustration to inspiration, no easy feat.

  • By Nageena

How I experience autism as a parent

I started my journey in autism not really knowing what to do. I WAS LOST, I was lost and very alone. No one appeared to understand my personal hell Words like 'he'll grow out of it', and 'he is just a late bloomer', just wasted precious time, time I could have used investigating and researching. Having just lost my baby Umer-Ali a several months earlier, I was not ready to hear that my only child, my first born, my pure love was not normal and would never be. 'He may never speak' or 'he will never amount to anything and will need 24 hour care for life' would echo loudly in my head over and over and over. I kept on telling myself that, "I am a chiropractor, I believe the body can heal itself. The body can heal itself." My Faith has also told me, there is no disease for which there is no cure.

It was at this point heavily pregnant with my daughter that I decided and made a vow to myself that ...I must fight, I must fight until I have found a way to heal my son. I will fight until the day I die and will not stop fighting until my son is independent and speaking despite what the other health care professionals have told me. I started by contacting my trusted friend Dr Amy Burn who pointed me to Dr Robin Pauc of the Tinsilly House Clinic, UK. Dr Pauc started with neurological exercises to stimulate the vestibular system and challenge the cerebellum, for Dani it was his right brain which was showing signs of developmental delay. We changed his diet to high fat and high protein. This was the beginning of our journey.

We have made many changes to his treatment program. He has been on the Gaps diet for the last 3 years, Fiji water, biomedical intervention, functional medicine including OAT tests, mitochondrial support, speech and language therapy, occupational therapy, Homeopathy, Ioncleanse footbaths and using Epsom salts along with his extremely important weekly Chiropractic adjustments and neurostimulation exercises. Dani is 8 years old now and is fully verbal and strongly independent. He has been discharged from Speech and Language therapy 6 Months ago. Our journey still continues.

Conclusion

I am here to say, never ever give up on your child, you are their voice, you are their protector and above all you are there to fight for them, they are counting on you to unlock them into your world or you into theirs, and I am here to share all I have learned, all that I know so you can find your own way in this too. All my love and ready to serve Nageena x